StampNews.com got to know interesting info concerning stamps and stamp collecting. Who could only imagine that a pile of stamps helped to support a child with a serious illness? Thousands of stamps have poured in after a couple put out an appeal to help collect as many as possible to raise money to find a cure for their daughter's rare genetic disease.
Carly and Paul Hadman set up stamp collection boxes in banks and shops across the Fens as part of an appeal to raise awareness and funds to find a cure for Late Infantile Batten Disease which their daughter Effie was diagnosed with last year.
Her mum Carly, of Whittlesey, thanked everybody for the response which she said had been amazing.
Effie was a bright, bubbly girl until for no apparent reason she suddenly forgot all of her numbers, colours and people's names. She then started suffering seizures.
Mrs Hadman said: "We thought she had epilepsy but in January 2014, when Effie was three and a half, we received the devastating news that she has Late Infantile Batten Disease which has a life expectancy of five to 12 years old".
Carly and her husband Paul are carriers for the rare disorder. The one ray of light is that their one year old son George does not have the disease ‒ he was six weeks old when they discovered Effie was terminally ill.
Batten disease is a fatal, inherited disorder of the nervous system, in which previously normal children develop vision problems or seizures.
At the moment, there is no treatment and no cure for Batten disease.
Sourced by wisbechstandard.co.uk